Hello!
I am part of a startup company in Cambridge, UK helping researchers find cures to genetic disorders by crowdsourcing genetic and health data. We allow users of our platform to add data to their profile in order to support research that matters most to them. We have a strong policy toward data privacy - users own their data and it is never shared without their permission.
We are currently raise awareness and support for those diagnosed with Phelan-McDermid Syndrome. Our aim is to create a big enough list of people with Phelan-McDermid Syndrome to attract more scientists to research this condition.
If you would like to participate or know someone who might, please register or forward this link. If you choose to register, we can help match you and other patients with PMS to researchers 🔗. No personally-identifiable information about you will ever be shared without you giving explicit consent for us to do so 🔒.
Submitted February 07, 2019 at 09:54PM by CharlotteGuz http://bit.ly/2SgCYsS
